An EU joint initiative was implemented in November of 2022, to address the hurdles in cross-border trials and cross-border trial access. We’re proud to announce that Patient in Focus is part of this initiative..
To build an expert council for this purpose, they’ve collected a series of relevant companies, panels, and organizations. The council is comprised of patient organizations, academic institutions, nonprofit organizations, research networks, CROs, pharmaceutical companies and biotech companies.
A lot of patients would like to participate in clinical trials, even if it is cross-borders. However, an uneasiness comes in to play, based on the feeling that they themselves (or their relatives/caregivers) have to be the driving force in such a project, simply because their experience is, that the healthcare professionals and hospitals do not communicate with each other.
By participating in this project, Patient in Focus aims to change this for patients. Through a greater collaboration with professionals in the health sector across national borders, we can change the structure of clinical trials, as well as set the stage for new levels of co-creation for both professionals and patients.
Patient in Focus (www.patientinfocus.org) is an international, disease neutral, nonprofit patient organization based in Europe. Built by patients for patients. Patient in Focus provides the opportunity to make a difference for yourself and others by being a voice with healthcare professionals, researchers, industry, academics etc. We do this through patient engagement, counseling, and a strong patient community, where we can create life-changing purpose and quality of life despite chronic illness, pain, and disabled.