News

Parents’ support guide caring for a child with a rare condition

Published on: 30/05/2022

Parents’ support guide caring for a child with a rare condition
Patients group
Member News

In close cooperation with Naevus Global (https://naevusglobal.nevusnetwerk.nl/) we have developed a new series of practical booklets for parents with children in the range of 0-4 years, 5-11 years and 12-17 years in 7 languages.

CMTC-OVM has developed a support guide for parents caring for a child with a rare condition (version 2022) in various languages. This series of booklets has been developed in collaboration with Naevus Global.

As soon as there are new translations, they will be added to their website.

Would you like to receive a number of printed copies? Please contact CMTC-OVM here.

Discover more about CMTC-OVM:

CMTC-OVM is a worldwide non-profit patient organization that aims to improve the quality of life of people suffering from vascular abnormalities (blood vessel abnormalities), such as CMTC (‘Van Lohuizen syndrome’), and stimulate scientific research on these disorders.

NEWS​

Related News

Why HLTH Las Vegas 2025 Is the Strategic Event Healthcare Leaders Can’t Miss

9 Jul 2025
Whether you're seeking sponsorships, partnerships, funding, or a platform to lead the conversation – HLTH 2025 puts you at the center of it all.

From Talk to Action: Global Health Insights from Convergence

9 Jul 2025
What happens when health, finance, science, and digital infrastructure stop working in silos and start solving problems together? Global leaders came ...

June 2025 ECHAlliance Newsletter

8 Jul 2025

New Round Tables announced to drive progress on EHDS and health AI

3 Jul 2025

The European Accessibility Act Is Here. Are You Ready?

2 Jul 2025
Why inclusive design is no longer optional – and how Big Motive can help you lead the way.

DTH-Lab Director: The G7 must act now to address the digital health transformation

2 Jul 2025
As digital platforms increasingly shape health systems and information flows, the G7 must lead in setting global standards to ensure safety, equity an...

Become a member

Join ECHAlliance to amplify your organisation’s message, grow your networks, connect with innovators and collaborate globally.
 
First name *
Last Name *
Email Address *
Country *
Position *
First name *
Last Name *
Email Address *
Country *
Position *