In close cooperation with Naevus Global (https://naevusglobal.nevusnetwerk.nl/) we have developed a new series of practical booklets for parents with children in the range of 0-4 years, 5-11 years and 12-17 years in 7 languages.
CMTC-OVM has developed a support guide for parents caring for a child with a rare condition (version 2022) in various languages. This series of booklets has been developed in collaboration with Naevus Global.
As soon as there are new translations, they will be added to their website.
Would you like to receive a number of printed copies? Please contact CMTC-OVM here.
CMTC-OVM is a worldwide non-profit patient organization that aims to improve the quality of life of people suffering from vascular abnormalities (blood vessel abnormalities), such as CMTC (‘Van Lohuizen syndrome’), and stimulate scientific research on these disorders.