Meet our new member: Branewo gUG.
The Branewo gUG built up the Alström Initiative (a rare disease). That means on the one side finding patients (early diagnosis), getting a registry, finding clinicians and researchers and setting up a Patient Organization. On the other side we aim to set up a pilot ecosystem along the patient journey of this rare disease.
We are working with government, health & social care providers, scientists, clinicians, pharmas, start-ups, researchers, patients groups and citizens.
Although we already work globally it is continuously important to build our global network. We are very active in the area of early diagnosis, gene therapy and patient centricity; and interested in all types of digital health innovations.