ECHAlliance is once again delighted to be partnering with the EURORDIS Black Pearl Awards.
The eleventh edition of the Awards will take place online on TUESDAY, 8th FEBRUARY 2022 from 18:00 until 19:30 CET and will bring together persons living with a rare disease, patient advocates, policy makers, scientists, healthcare professionals, industry representatives, and more.
The February event is an annual awards ceremony launching the month of Rare Disease Day. Since 2012, EURORDIS-Rare Diseases Europe has organised this event to recognise the major achievements and outstanding commitment of patient advocates, patient organisations, policymakers, scientists, companies, and media who strive to make a difference for the rare disease community.
The formation of a natural black pearl is extremely rare – just like these pearls, the recipients of the EURORDIS Black Pearl Awards are unique and deserve our recognition and admiration.
The EURORDIS Black Pearl Awards are presented to individuals, organisations and companies who dedicate their lives to making a difference for the rare disease community.
Despite important advances, the rare disease community continues to face enormous challenges. The work and achievements of the awardees are of paramount importance to improving lives and finding cures for people living with a rare disease.