WFIPP: Collaboration in continence care between international scientific societies and patient organizations

23 January 2023
WFIPP ECHAlliance

For the first time in continence care, international scientific societies and patient organizations have come together as equal partners to commit to a formal collaboration that addresses the needs of patients. On 25 November 2022, a workshop was held between leaders from the World Federation of Incontinence and Pelvic Problems (WFIPP), Sociedad Iberoamericana de Neurourología y Uroginecología (SINUG), the International Continence Society (ICS), and European Association of Urology (EAU) Patient Office to agree the content and scope of a Commitment to Collaboration in Continence Care (4Cs). These 4Cs have been defined with institutional support from Medtronic.

For the first time in continence care, international scientific societies and patient organizations have come together as equal partners to commit to a formal collaboration that addresses the needs of patients. On 25 November 2022, a workshop was held between leaders from the World Federation of Incontinence and
Pelvic Problems (WFIPP), Sociedad Iberoamericana de Neurourología y Uroginecología (SINUG), the International Continence Society (ICS), and European Association of Urology (EAU) Patient Office to agree the content and scope of a Commitment to Collaboration in Continence Care (4Cs). These 4Cs have been defined with institutional support from Medtronic.

Urinary and/or fecal incontinence affects between 10% and 40% of adults,i,ii often as a consequence of another condition or a side effect of treatment. Some of these people live with serious physical, psychosocial or economic consequences that are not fully assessed or addressed by the healthcare system. A patient-centred, integrated care approach to treatment is widely considered to be best practice, but it does not represent the current reality for many people living with incontinence.
SINUG, ICS, EAU and WFIPP believe that meaningful collaboration between scientific societies, patient organizations, and industry, is the best way to address the needs of patients, and to effect positive structural changes within the healthcare system.

This group agreed three initial areas for collaboration:
1) Educating multiple stakeholders including patients and caregivers, doctors and allied health workers, policy makers and funding organizations on the importance of shared decision-making, patient-centred care and communication skills
2) Improving access to trusted information about continence issues for the general public, patients and healthcare workers
3) Embedding the principles of joint working within our organizations, with the ultimate aim of influencing public and private healthcare structures to become more patient-centred


By committing to incorporate patients’ perspectives and priorities into training programmes, information provision, and organizational structures, this group has developed a model for joint working that can be adopted by other scientific societies and patient organizations internationally.

Discover more about WFIPP:

The vision of WFIPP is to create a world where people living with all forms of pelvic floor dysfunction(s) can enjoy a high quality of life, play an active role in society and have access to appropriate treatments.

Recent posts
EnglishFrenchItalianPortugueseSpanish