News

Overview of the Community Collaboration Concept

Published on: 16/02/2022

Overview of the Community Collaboration Concept
Dementia

Authors: Valentina Bressan, Henriette Hansen, Kim Koldby, Knud Damgaard Andersen, Allette Snijder, Valentina Tageo, Natalia Allegretti, Federica Porcu, Sara Marsillas, Alvaro García, Alvisa Palese,∗

INTRODUCTION

This document is a short overview of the “Community Collaboration Concept”, which has been developed within the European ERASMUS+ Project called ‘Embracing DEmeNtia’, in short, the EDEN Project. The EDEN project has as main objective to create awareness about the importance of dealing with dementia as a community challenge and not only as an individual challenge, emphasizing the important role of relatives as well as a close and “embracing” collaboration on local level between the target groups of the project being; people living with dementia (PwD), relatives of people living with dementia, health and care professionals, local authorities, civil society actors and volunteers.

THE CHALLENGE ADDRESSED BY THE EDEN PROJECT

The development of the EDEN project is motivated by the increasing number of PwD in the European Union (EU), and the need to have a common approach in Europe towards this important societal challenge, which, if not dealt with in a collaborative way, risk causing difficult life situations for both the PwD and their relatives and high economical pressure in our society.

With the increasing number of EU citizens living with dementia, Alzheimer’s and other types of brain related diseases, the care of these citizens has become a significant and complex challenge within the EU. Due to the nature of the disease and the gradual cognitive decline, dementia is considered a ‘relatives’ disease’ because of the strain that the course of the disease can be for a spouse or other close relatives.

The support provided by relatives of the PwD is of great importance to the persons with dementia, their relatives, health care professionals and the society as a whole. If relatives cannot cope with the task, the need for assisted living facilities and / or a life in a care home, is much higher with the resulting human and economic costs for the family and the health and social care systems. This calls for a greater emphasis on supporting relatives and enable them to cope with the tasks of helping the person with dementia.

This challenge calls for social innovation in order to offer new and better ways of thinking, acting and living together in a way that includes PwD and that will foster a better quality of life for them and their relatives.

PROJECT PARTNERS AND TARGET GROUPS

The University College Lillebaelt (Denmark), as coordinator, the Southern Denmark European Office (Denmark), the Department of Medical Area of the University of Udine (Italy), the Healthy Ageing Network Northern Netherlands (Holland), the Fundación Instituto Gerontológico Matia (Spain) and the European Connected Health Alliance (ECHAlliance, UK). Each partner has involved in the project groups of family members who follow at home people affected by dementia, health and social professionals dealing with dementia at multiple levels and representatives / volunteers of family associations.

THE COMMUNITY COLLABORATION CONCEPT

The concept of Community Collaboration (CCC) is based on all the good experiences and practices that already exist with regard to building dementia-friendly communities. However, the CCC goes one step further by proposing the development of close collaboration between all stakeholders, both public and individuals who, at various levels, deal with dementia. The CCC can therefore be seen as a reference model to help stakeholders move from the desire to become a community that embraces dementia to effectively be an inclusive community.

NEWS​

Related News

New Round Tables announced to drive progress on EHDS and health AI

3 Jul 2025

The European Accessibility Act Is Here. Are You Ready?

2 Jul 2025
Why inclusive design is no longer optional – and how Big Motive can help you lead the way.

DTH-Lab Director: The G7 must act now to address the digital health transformation

2 Jul 2025
As digital platforms increasingly shape health systems and information flows, the G7 must lead in setting global standards to ensure safety, equity an...

InnoHSupport Open Calls

1 Jul 2025
Welcome to the InnoHSupport Open Calls!

Transformative Health Instrument Call 2025

1 Jul 2025
Apply to the Transformative Health Instrument (THI) Call 2025 if you are a growing and innovative healthcare start-up working on solutions that have s...

Longitude Prize on ALS

1 Jul 2025
The £7.5 million (~$10 million) Longitude Prize on ALS incentivises the use of AI-based approaches to transform drug discovery for amyotrophic lateral...

Become a member

Join ECHAlliance to amplify your organisation’s message, grow your networks, connect with innovators and collaborate globally.
 
First name *
Last Name *
Email Address *
Country *
Position *
First name *
Last Name *
Email Address *
Country *
Position *