News

Urgent call for volunteers to help people with a rare disease from Ukraine

Urgent call for volunteers to help people with a rare disease from Ukraine
Rare Diseases
Ukraine Health Connector

The situation in and around Ukraine continues to evolve at a fast pace, and the needs of people with a rare disease affected by the war are changing.  Even so, we are starting to see some patterns and examples of where people need support.

Do you have some knowledge of or experience with a rare disease?

Do you also have any of the below?

  • Leadership or organisational experience in working with refugees or crisis management?
  • Russian or Ukrainian language skills?
  • Experience working with a helpline, or helping rare disease patients to solve problems with access or resettlement?

If yes please send an email to helpukraine@eurordis.org here with

  • Your name and contact details
  • The disease(s) you have experience with
  • Any languages you speak
  • A brief outline of your experience and how you want to help
  • Your general time availability (how much time, what times of day)

We will do our best to match you with an organisation or task where you can help.

NEWS​

Related News

InnoHSupport Open Calls

11 Feb 2025
Welcome to the InnoHSupport Open Calls!

Healthcare AI Solutions

6 Feb 2025
The UK government has launched a £150 million procurement drive for artificial intelligence solutions that can be used by the NHS in areas like medica...

Women Entrepreneurship Bootcamp

6 Feb 2025
Welcome to EIT Health Women Entrepreneurship Bootcamp – a customised experience crafted exclusively for you.  

MedTech Bootcamp

6 Feb 2025
EIT Health’s MedTech Bootcamp has been exclusively crafted for trailblazers like you to help you get a clear and valid proof of concept for your idea.

Empowering AI Innovations to Transform Lives: GSMA Launches New Innovation Fund for Startups

6 Feb 2025
The GSMA Innovation Fund is offering grants of up to £250,000 and tailored venture-building support for enterprises using AI and emerging technologies...

Co-Creating the Future of Clinical Data: Join Digital Health Nation Challenge

5 Feb 2025
Join the “Improving clinical data capture for better healthcare outcomes” open innovation call, 5 Feb - 21 March, 2025, to explore the challenge of in...

Become a member

Join ECHAlliance to amplify your organisation’s message, grow your networks, connect with innovators and collaborate globally.
 
First name *
Last Name *
Email Address *
Country *
Position *
First name *
Last Name *
Email Address *
Country *
Position *