News

The Burden of Disease

Published on: 06/09/2021

The Burden of Disease
Member News

Anyone who has a chronic (skin) disease can look at it in two ways. On the one hand, you may be glad that the (skin) disease is not perceived as being as severe as other diseases. On the other hand, there is a feeling of denial of the seriousness of the disease, even though you suffer daily from itching or shame.

This is the seventh article of the Dutch global non-profit patient organisation for patients with CMTC and Other Vascular (bloodvessel) Malformations, their families and healthcare providers.

This edition, we discuss the burden of disease which is disease independent.

Anyone who has a chronic (skin) disease can look at it in two ways. On the one hand, you may be glad that the (skin) disease is not perceived as being as severe as other diseases. On the other hand, there is a feeling of denial of the seriousness of the disease, even though you suffer daily from itching or shame. That sense of disregard weighs heavily on most people with (skin) disease. This also lends itself to two interpretations: the feeling of neglect is not based on reality, and that one has a wrong image of oneself in relation to others. Just as most people believe that they can drive better than the average driver. But those feelings can also be a reaction to the actual situation, and then the neglect becomes part of the burden of the illness itself.

More information here

The next time we will discuss fear and pain management in children.

NEWS​

Related News

InnoHSupport Open Calls

1 Jul 2025
Welcome to the InnoHSupport Open Calls!

Transformative Health Instrument Call 2025

1 Jul 2025
Apply to the Transformative Health Instrument (THI) Call 2025 if you are a growing and innovative healthcare start-up working on solutions that have s...

Longitude Prize on ALS

1 Jul 2025
The £7.5 million (~$10 million) Longitude Prize on ALS incentivises the use of AI-based approaches to transform drug discovery for amyotrophic lateral...

Applications Now Open: Spread & Scale Academy

1 Jul 2025
Do you have an innovation or solution that’s working well in one place and could make a difference elsewhere?

Securing funding for your innovation: The bid lifecycle

1 Jul 2025
This blog is the second instalment in our Bid Lifecycle series, where we explore the key stages involved in securing funding for innovative healthcare...

HLTH Brought the Energy to Amsterdam. Now It’s Vegas’ Turn.

26 Jun 2025
Next up: HLTH USA, October 19–22 in Las Vegas.

Become a member

Join ECHAlliance to amplify your organisation’s message, grow your networks, connect with innovators and collaborate globally.
 
First name *
Last Name *
Email Address *
Country *
Position *
First name *
Last Name *
Email Address *
Country *
Position *