Anyone who has a chronic (skin) disease can look at it in two ways. On the one hand, you may be glad that the (skin) disease is not perceived as being as severe as other diseases. On the other hand, there is a feeling of denial of the seriousness of the disease, even though you suffer daily from itching or shame.
This is the seventh article of the Dutch global non-profit patient organisation for patients with CMTC and Other Vascular (bloodvessel) Malformations, their families and healthcare providers.
This edition, we discuss the burden of disease which is disease independent.
Anyone who has a chronic (skin) disease can look at it in two ways. On the one hand, you may be glad that the (skin) disease is not perceived as being as severe as other diseases. On the other hand, there is a feeling of denial of the seriousness of the disease, even though you suffer daily from itching or shame. That sense of disregard weighs heavily on most people with (skin) disease. This also lends itself to two interpretations: the feeling of neglect is not based on reality, and that one has a wrong image of oneself in relation to others. Just as most people believe that they can drive better than the average driver. But those feelings can also be a reaction to the actual situation, and then the neglect becomes part of the burden of the illness itself.
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The next time we will discuss fear and pain management in children.
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