JOB OPPORTUNITY! Eurordis is looking for a Patient Data Director

The Patient Data Director (PDD) is responsible for shaping EURORDIS’ vision in the field of health data sharing for rare diseases. Working with the Digital & Data Patient Engagement Manager, s/he ensures EURORDIS captures and brings the views of people living with rare diseases to the myriad multistakeholder efforts working to build an integrated European framework for the collection, use, and reuse of data of relevance to rare diseases.