News

Evolving trust in data sharing

Evolving trust in data sharing
Data, Horizon 2020

MyData Online 2020 conference | 10 Dec 2020, 15:45-17:15 CET

The ECHAlliance organised a session in the MyData 2020 Conference, with the key goal of discussing and validating the preliminary conclusions on citizen-controlled health data sharing governance, mostly developed under the DigitalHealthEurope project and presented in the Consultation paper under this theme.

Some of the points identified as “discussion starters” relate to the route to find a common pathway that engages different stakeholders’ perspectives and approaches in the discussion about data sharing uncovered that technology itself is not perceived as the main challenge. Citizens are increasingly aware of the value of their data, and want to know what, how and what it is used for. Regulations need to be clear about what data needs special protection.

Karolina Mackiewicz, ECHAlliance, chaired the session with a varied panel of experts representing different sectors and professional experiences:

  1. Carina Dantas, European Connected Health Alliance (ECHAlliance)
  2. Veli Stroetmann, Empirica Technology Research
  3. Zoi Kolitsi, Institute of Innovation Through Health Data (i~HD)
  4. Samuel Jacinto, Shared Services of Ministry of Health (SPMS)
  5. Tino Marti, European Health Telematics Association (EHTEL)
  6. Christiane Grünloh, Roessingh Research and Development (RRD)
  7. Isabelle de Zegher, B!loba, MyData4Pandemics Thematic Group
  8. Bogi Eliasen, Copenhagen Institute for Futures Studies
  9. Risto Kaikkonen, Solita

The main conclusions, summarised in key points, target the need to:

  1. Demonstrate and communicate better the added value of data-sharing
  2. Invest in tools and methods that enable citizens to access and control their data
  3. Invest in a culture of trust

NEWS​

Related News

Cost Effectiveness of Cervical Cancer Screening in Kenya

18 Apr 2024
Africa Health Business conducted a study to evaluate the cost- effectiveness of various cervical cancer detection methods. The study delved into the f...

Insights from the 4P-CAN Project Event at the European Parliament

18 Apr 2024
Discover latest cancer prevention insights at the European Parliament. Explore Horizon Europe Mission impact, Beating Cancer Plan, and collaborative s...

Transforming Antimicrobial Resistance: The Role of Digital Integration in AMR EDUCare

17 Apr 2024
As a leading organisation in the digital health space, ECHAlliance supports this project as a beneficiary, contributing to various project work packag...

Spain – Basque Health Ecosystem is ECHAlliance Ecosystem of the Month – April

17 Apr 2024
This month we are featuring our Spain - Basque Health Ecosystem as our Ecosystem of the Month.

The Miguel Delibes Cultural Center has been the epicenter of the Sectoral Meeting on Care and Innovation that commemorates the 10th Anniversary of the SIVI Cluster

16 Apr 2024
This conference, organized by the SIVI Cluster, was presented as a space for reflection, exchange and recognition of the advances and outstanding cont...

CRANE: pre-commercial procurement project. FundeSalud participate in the co-creation sessions of the CRANE Project in Copenhagen

16 Apr 2024
Three European companies are designing a prototype of a possible technological solution for patients with chronic diseases (Diabetes, Cardiovascular D...

Become a member

Join ECHAlliance to amplify your organisation’s message, grow your networks, connect with innovators and collaborate globally.
 
First name *
Last Name *
Email Address *
Country *
Position *
First name *
Last Name *
Email Address *
Country *
Position *