Practical webinar by Dr. Margaret Lee who is both a doctor as well as a patient on the 26th of March at 16:00 CET.
This interactive workshop is lead by Dr. Margaret Lee, who is both a doctor as well as patient, and is intended for both patients with vascular malformations as well as their parents and siblings. Items that could be discussed are dealing with my condition at school, how do I see myself, my self-confidence, I don’t accept my situation (denial of my condition), how do I as parent with my child during puberty, my brother has a vascular condition and how can I help him.
CMTC-OVM is a worldwide non-profit patient organization that aims to improve the quality of life of people suffering from vascular abnormalities (blood vessel abnormalities), such as CMTC (‘Van Lohuizen syndrome’), and stimulate scientific research on these disorders.
ECHAlliance The Global Health Connector: Connecting the dots between people, knowledge and innovation
info@echalliance.com
Connected Health Alliance CIC, NISP Innovation Centre, Queen’s Road, Queen’s Island, Belfast, United Kingdom, BT3 9DT
ECHAlliance CLG, 20 Harcourt Street Dublin, D02H364, Ireland
