Join us at the 1st of the series of international openEHR events where we will talk about the importance of open data. We will showcase an example of the crossborder collaboration between Italy and Slovenia with providing an innovative diagnosis of rare immune-mediated inflammatory diseases in children. The webinar will take place on Thursday, 12 May 2022, at 11:00.
The goal of openEHR community is to fundamentally change the perception of data in healthcare to Improve outcomes in clinical healthcare, public health, and the value of secondary data use.
OpenEHR-NL is pleased to announce a series of webinars depicting international use-cases in which openEHR has contributed to the above goals.
Cattedra: Crossborder collaboration and regional joint registries. An innovative diagnosis of rare immune-mediated inflammatory diseases in children made possible with openEHR.
The Cattedra project set up a joint registry and data exchange on rare diseases for children in the area of paediatric rheumatology using open data. The project connects Italian children’s hospital IRCCS Burlo Garofolo in Trieste and Slovenian University Medical Centre Ljubljana (the Division of Paediatrics). With openEHR data models and input forms, the partners aim to share knowledge and work on improving the therapeutic methodologies and diagnostic possibilities of rare immune-mediated inflammatory diseases in children.
Marcel Swennenhuis, member openEHR-NL
Prof. Dr. Tadej Avčin, dr. med., Head of the Department of Allergology, Rheumatology, and Clinical Immunology, University Children’s Hospital, University Medical Center Ljubljana
Prof. Dr. Andrea Taddio, MD, Assistant Professor, Institute of Child and Maternal Health – IRCCS “Burlo Garofolo”, University of Trieste, Italy
What is openEHR?: https://www.openehr.org/about/what_is_openehr
Why openEHR is eating healthcare?: https://medium.com/@alastairallen/why-openehr-is-eating-healthcare-e28bd792c50c
Crossborder cooperation for innovative diagnosis of rare diseases in pediatricians: https://www.ita-slo.eu/en/cattedra
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