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The Digital Health Society Summit

“Connecting Digital Health & Data Initiatives in Europe”
We are delighted to announce the

Digital Health Society Summit “Connecting Digital Health & Data Initiatives in Europe”

It will provide a unique opportunity to participate, network and collaborate for anyone interested in digital health. The Summit is designed to be an open two-day forum for the many European initiatives and projects on the data-driven transformation of health and social care to converge and build collaboration bridges.
The Summit is under the patronage of the Finnish Presidency of the Council of the European Union and is supported by ECHAlliance.

Agenda

Connecting Digital Health and Data Initiatives in Europe – The time to Scale?

The Summit is under the patronage of the Finnish Presidency of the Council of the European Union and is supported by ECHAlliance.

This is an outline agenda subject to change

11th December 2019

8:00 – 9:00 Registration & Coffee

 

9:00 – 9:10 Welcome & Introduction

  • Bleddyn Rees, Deputy Chair at ECHAlliance
  • Tapani Piha, Special Adviser to the Finnish EU Presidency, Former Head of Unit at the European Commission

 

9:10 – 9:15 Welcome from the Ministry of Social Affairs &Health

Message from
Dr. Päivi Sillanaukee, Director General, Ministry of Social Affairs and Health at Government of Finland

 

9:15 – 9:35 The Finnish Presidency of the Council of the European Union

Conclusions of the Finnish Presidency
Veli-Mikko Niemi, Director-General, International Affairs, Ministry of Social Affairs and Health

 

9:35 – 10:15 The Finnish Digital Health Story

  • A summary and timeline of the development of Digital Health in Finland
  • Overview of Finland’s future plans and legislation for Digital Health

Hannu Hamalainen, Senior Advisor at Finnish Innovation Fund Sitra

 

10:15 – 12:00 Why are we not making better use of real-world data for learning?

This panel discussion should explore the full spectrum of opportunity. Data collected in real life settings (‘real-world data’) can create opportunities across the healthcare pathway: from wellness and disease prevention to accelerated treatment discovery and enhanced clinical research, better and faster diagnoses and access to personalised treatments for patients.. In spite of the increasing wealth of data sources available, and interest from healthcare systems to leverage real world data in decision-making, significant challenges remain that are preventing us from reaping its benefits. During the discussion we will explore the potential for real world data to drive more innovative and sustainable patient care in Europe, as well as the key barriers impeding its use and uptake.

Topics:

  • Primary and Secondary Use of Data
  • AI & algorithms
  • Data access and interoperability
  • Data sources and quality
  • Trust and acceptability
  • Q&A and panel discussion

Moderator: Dipak Kalra, President at European Institute for Innovation through Health Data ( I~HD)

Catherine E Chronaki, Secretary General at HL7 Foundation Europe and VP at European Federation for Medical Informatics (EFMI)
Rachel Dunscombe , CEO at NHS Digital Academy & Director at Digital Health Society
Mathias Ekman, Industry Executive for Health and Lifescience at Microsoft Western Europe
Hannu Hamalainen, Senior Advisor at Finnish Innovation Fund Sitra
Angela Ibald-Mulli, Head, Medical Evidence Generation Primary Care at Sanofi
Enkeleida Nikaï, Head of Real World Evidence, Senior Director at Janssen Europe, Middle East & Africa (EMEA)

“So What?” panel discussion

 

12:00 – 13:00 Lunch & Networking

 

13:00 – 14:45 How do we capture and respect citizens’ preferences on data governance? Challenges and opportunities in building trust

This panel is jointly promoted by Digital Health Society Task Force 2 & Digital Health Europe (DHE) and is the first step towards establishing a European Digital Forum of relevant (private and public) organizations that have developed citizen-controlled data governance and digital empowerment tools and can contribute with their input to the design of the final recommendations of DHE. We will investigate different models and approaches to reflect on how we engage with the public and transparently demonstrate that we can respect their wishes, either by consensus or as individuals. If health data is the fuel that can drive the transformation of healthcare systems to improve the population’s health and wellbeing, what are the reasonably justifiable limitations to its use? If there is an ethical imperative to use health data, what should be the framework that governs it in Europe? What will be the role of the future European Health Data Space? This discussion will take a deep dive into a widely held stumbling block to scaling digital health: how we build better trust and understanding in the use of health data to unlock its societal benefits, and the role that EU policy can play.

Topics:

  • Citizen controlled data governance innovative models (e.g. data cooperatives)
  • Data donation
  • The Finnish approach
  • Consent, Transparency & Trust
  • Ethics
  • Governance (multi-stakeholder perspective)

Moderator: Bleddyn Rees, Deputy Chair at ECHAlliance

Nicola Bedlington, Special Advisor at European Patients Forum
Sandra Courbier, Rare Barometer survey programme Senior Manager , EURORDIS -Rare Diseases Europe
Angela Li, Commercial + Marketing Excellence & Strategy Lead at Johnson & Johnson
Maritta Perälä-Heape, Director, Centre for Health and Technology at Faculty of Medicine, University of Oulu
Gaston Remmers, Director at Stichting Mijn Data Onze Gezondheid
Jaana Sinipuro, Project Director at IHAN SITRA
Valentina Tageo, International Projects Director at ECHAlliance

“So What?” panel discussion

 

14:45 – 15:00 Croatian Presidency and priorities in e-health / digital health

Hrvoje Belani, Head of e-Health and Cybersecurity at Ministry of Health, Croatia

 

15:00 – 15:30 Coffee & Networking

 

15:30 – 17:15 Health Data & Policy Initiatives across Europe: Who, What, Why & When?

Moderator: Joan Cornet, Director at Digital Health Observatory and Coalition of the Willing at ECHAlliance

Message from Henrique Martins, President of the Board at the Shared Services of the Portuguese Ministry of Health, Portugal (SPMS, E.P.E.)

  • Data Saves Lives, Nicola Bedlington, Special Advisor at European Patients Forum
  • European Regional and Local Health Authorities (EUREGHA), Fliss Bennée, Deputy Director, Technology and Digital at Llywodraeth Cymru – Welsh Government
  • Innovative Medicines Initiative, Magda Chlebus, Executive Director Science Policy & Regulatory Affairs at EFPIA
  • The Digital Health Society, Bleddyn Rees, Director at the Digital Health Society
  • EU Health Coalition, Roberta Savli, Senior Manager in the Healthcare Systems department at EFPIA
  • Digital Health Europe, Veli Stroetmann, Head of eHealth Research and Policy at empirica GmbH
  • The Digital Health Society, Valentina Tageo, International Projects Director at ECHAlliance
  • “So what?” panel discussion

 

17:15 – 17:30 Conclusion to Day 1

Bleddyn Rees, Deputy Chair at ECHAlliance

12th December 2019

8:30 – 8:35 Welcome and key messages from Day 1

Bleddyn Rees, Deputy Chair at ECHAlliance

 

8:35 – 8:45 Digital health as a means for Greece to leapfrog the lost years

Theodore Vontetsianos, Greek Ministry of health, Coordinator Greek Network EIP on AHA

 

8:45 – 9:00 All Policies for a Healthy Europe

Mary Harkin, Chair at All Policies for a Healthy Europe

 

9:00 – 10:30 Digital Health Society Task Force 4: success stories of digital transformation

Moderator: Joan Cornet, Director at Digital Health Observatory and Coalition of the Willing at ECHAlliance

  • Digital Transformation for a Health System: Understanding your starting point and measuring progress by Emily Mailes, Senior Manager, Global Health at EY
  • A digital circle of care: frailty by Chaloner Chute, Chief Technology officer at Digital Health & Care Institute Scotland
  • Next generation EHR systems based on vendor-neutral data persistence by Tomaz Gornik, CEO at Better
  • Ambiguous advice, questionable quality: Determining, evaluating and distributing high quality Health Apps by Liz Ashall Payne, Founder CEO at ORCHA
  • Digital Solutions to diagnose and monitor neuromotor impairments by Prof Mark Van Gils, Research Professor at VTT and Rutger Zietsma, Chief Executive Officer at Manus Neurodynamica
  • An ecosystem of wellness apps on top of Finnish Kanta PHR by Mikael Rinnetmäki, Founder at Sensotrend Oy
  • Learning from the Cross Border Collaboration between Finland and Estonia by Pritt Tohver, Advisor for digital services innovation and development at Ministry of Social Affairs Estonia
  • Health Passport for person-centered digital integrated care by Aslak Felin, Chief Product Officer at CareChain

 

10:30 – 11:00 Coffee break & Networking

 

11:00 – 12:30 ECHAlliance International Gathering of Digital Health Ecosystems – Including the Launch of the ECHAlliance Finnish Network

 

Background and Progress with the ECHAlliance Finnish Network of Ecosystems

Andy Bleaden, Director Ecosystems and Membership at ECHAlliance

 

11:07 – 11:10 Message from Sinikka Salo, Leader of Change, Ministry of Social Affairs and Health at Finnish Government

 

11:10 – 11:20 OuluHealth: our ecosystem experience

Maritta Perälä-Heape, Director, Centre for Health and Technology at Faculty of Medicine, University of Oulu

 

11:25 – 11:45 Our new Ecosystems: our key priorities

  • Kuopio Health Cooperative, Aki Gröhn, Chief Executive Officer at Kuopio Health
  • South Ostrobothnia Ecosystem, Sami Perälä, Developing Manager, Well Being Technology at Seinäjoki and Sanna Inkeri, Project Manager at Regional Council of South Ostrobothnia
  • Vaasa Welfare Technology Ecosystem, Tony Pellfolk, Head of Development at Vaasa Medical District
  • Keho Central Finland Ecosystem, Kari Pirinen, Development Manager at Regional Council of Central Finland

 

11:50- 12:20 – Welcome to the wider ECHAlliance Network

Introduction by Andy Bleaden, Director Ecosystems and Membership at ECHAlliance

Recent Ecosystem launches:

  • Transylvanian Ecosystem Romania by Ion Gheorge Petrovai, Co-Founder at Fresh Blood
  • South West England SWITCH Ecosystem by Arunangsu Chatterjee, Associate Professor of Digital Health & Education at University of Plymouth

Collaborating together

  • Learning Expeditions by Gisela Garcia-Alvarez, Managing Director at Cluster Saúde (Galicia Ecosystem – Spain)
  • Multi Ecosystems – Digital Health Ecosystem Wales by Paul Howells, NHS Wales and Catrin Rees, Programme Executive at Life Sciences Hub Wales

Collaboration across many borders

  • Scottish Ecosystem by Sanna Rimpiläinen, Research and Skills Manager at Digital Health & Care Institute

 

12:25 – 12:45  Connecting up with existing Finnish Health Ecosystems

Where are we – What’s next? by Marjaana Komi, VTT
 

Accelerating internationalization:

  • Health Innovation Village at GE by Mikko Kauppinen, Village chief and René Coffeng, Engineering Manager for Mobile Digital Health at General Electric
  • Cognitive Healthcare Innovation Cluster by Miikka KiiskiBusiness Development Executive at IBM Finland

 

12:50 Formal Welcome,  Signing Ceremony of the ECHAlliance Finnish Network and Official Picture

 

12:55 – 13:15 Closing remarks

Bleddyn Rees, Deputy Chair at ECHAlliance

 

13:15 – 14:15 Lunch and networking

Speakers

List of speakers coming soon...

Liz Ashall-Payne ORCHA
Founding CEO
Nicola Bedlington European Patients’ Forum
Special Advisor
Hrvoje Belani Ministry of Health
Head of e-Health and Cybersecurity
Fliss Bennee Welsh Government
Deputy Director
Andy Bleaden ECHAlliance
Director Ecosystem Development
Arunangsu Chatterjee Centre of Health Technology
Director
Chute Chaloner DHCI Scotland
Chief Technology Officer
Magda Chlebus EFPIA
Executive Director Scientific & Regulatory Affairs
Catherine Chronaki HL7 Foundation
General Secretary
René Coffeng GE Healthcare
Engineering Manager
Joan Cornet DHO
Director
Sandra Courbier EURORDIS
Social Research Director - Rare Barometer Programme Lead
Rachel Dunscombe NHS/KLAS Arch
CEO of the NHS Digital Academy and global lead at KLAS Arch collaborative
Mathias Ekman Microsoft
Industry Executive for Health and Lifescience
Gisela Garcia-Alvarez CSG
Managing Director
Tomaž Gornik Better/OpenEHR
CEO of Better, co-Chair of OpenEHR Foundation
Aki Gröhn Kuopio
Chief Executive Officer
Hannu Hämäläinen FIF Sitra
Senior Advisor
Paul Howells DH Ecosystems
Programme Lead
Angela Ibald-Mulli Sanofi
Head of Medical Evidence Generation Primary Care
Sanna Inkeri Regional Council
Project Manager
Prof. Dipak Kalra i~HD
President
Mikko Kauppinen Village
Village Chief
Miikka Kiiski IBM Finland
Business development executive
Angela Li Johnson & Johnson
Commercial + Marketing Excellence Lead
Emily Mailes EY
Senior Manager
Emily Mailes SPMS, E.P.E.
President
Veli-Mikko Niemi Ministry of Social Affairs and Health
Director General
Enkeleida Nikaï EMEA
Senior director
Brian O’Connor ECHAlliance
Chair
Tony Pellfolk Vaasa Hospital District
Head of Development
Maritta Perälä-Heape CHT, Oulu
Director
Sami Perälä SeAMK
Development Manager
Ion-Gheorghe Petrovai FreshBlood HealthTech
Co-Founder and Project Manager
Tapani Piha Finnish EU Presidency
Finnish EU Presidency, Former Head of Unit at the European Commission
Bleddyn Rees ECHAlliance
Deputy Chair and Digital Health Society, Digital Health Expert and Lawyer
Catrin Rees DH Ecosystems
Programme Executive
Gaston Remmers Stichting Mijn Data Onze Gezondheid
Director
Dr Sanna Rimpiläinen DHI
Head of the Research and Knowledge Management team
Mikael Rinnetmäki Sensotrend
Founder
Roberta Savli EFPIA
Senior Managerin the Healthcare Systems department
Jaana Sinipuro Sitra
Project Director
Veli Stroetmann Empirica
Director
Valentina Tageo ECHAlliance
International Projects Director
Priit Tohver Ministry of Social Affairs
Advisor
Mark Van Gils VTT
Research professor
Theodore Vontetsianos Ministry of Health
Coordinator Greek Network EIP on AHA
Rutger Zietsma Manus Neurodynamica Ltd
CEO
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Location

Finlandia Hall

Mannerheimintie 13e, 00100

Helsinki, Finland

Room 7

Practical Information

HOW TO GET TO THE VENUE

Check the instructions to get to the venue

ACCOMODATION

Hotels close to Finlandia Hall

SIGHTSEING

Top 14 sights in Helsinki

Registration

Please contact Beatriz Sanz for further questions

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