Rare Disease Day: Video by Katie Allen (Canada) about her CMTC journey
27 February 2023
Personal experience on Rare Disease Day from Katie Allen, from CMTC-OVM
Katie is one of our Patient Advocates from Canada and shares a bit of her experience. We not only support people with CMTC but also with Other Vascular Malformations such as Klippel-Trenaunay Syndrome (KTS) and Diffuse Capillary Malformation with Overgrowth (DCMO).
Discover more about CMTC-OVM
CMTC-OVM is a worldwide non-profit patient organization that aims to improve the quality of life of people suffering from vascular abnormalities (blood vessel abnormalities), such as CMTC, their families, and stimulate scientific research into these disorders.