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News & Press: News

Nominations for the EURORDIS Black Pearl Awards 2019 are open until 20 August 2018

09 July 2018   (0 Comments)
Posted by: Beatriz Sanz
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Nominations for the EURORDIS Black Pearl Awards 2019 are open until 20 August 2018. The EURORDIS Black Pearl Awards are held in celebration of Rare Disease Day. Rare Disease Day 2019 is on 28 February.


Nominate the person or organisation that you think deserves recognition for their outstanding efforts to improve the lives of those affected by rare diseases for a 2019 EURORDIS Black Pearl Award!  


Don’t miss your chance to nominate the person, patient organisation or company that has gone the extra mile by making your nomination via 20 August.  All nominations must be submitted in English. Submissions can be made by filling out the form or by video. 


The EURORDIS Black Pearl Awards honour the outstanding efforts of individuals and organisations across the rare disease community. They are presented to patient advocates, patient organisations, policy makers, scientists, companies and media. 


Anyone fromanywherein the worldcan make a nomination for any of the following categories: 


·     Young Patient Advocate Award

·     European Rare Disease Leadership Award

·     Policy Maker Award

·     Scientific Award

·     EURORDIS Volunteer Awards

·     EURORDIS Members Award

·     Company Award for Health Technology New category for 2019!

·     Company Award for Innovation

·     Company Award for Patient Engagement

·     International Media Awards

·     Lifetime Achievement Award


Nominations for the EURORDIS Black Pearl Awards are shortlisted by a selection committee and the winners selected by the EURORDIS Board of Directors. Read more about last year's awardees.


The EURORDIS Black Pearl Awards 2019 will be presented at a ceremony held in Brussels on 12 February 2019 to mark the occasion of Rare Disease Day.