Join ECHAlliance’s session “Citizens’ health data sharing” at the Digital Health Europe Summit

20th September 2021

We are looking forward to ECHAlliance’s session Citizens’ health data sharing on the 29th at 14.40 CEST.

We are delighted to join the Digital Health Europe Summit (28th-30thSeptember) which will mark the grand finale of the DigitalHealthEurope (DHE) project, where the ECHAlliance is a consortium partner. 

The Summit will bring together EU policymakers, funders, digital health experts and other stakeholders for inspiring and forward-looking debates, including prominent keynote speakers such as the Finnish Prime Minister Esko Aho, Ioana-Maria Gligor (DG SANTE) and Marco Marsella (DG CNECT). 

Topics will range from real-life transformation through digital health (Day 1), to empowering citizens (Day 2) and scaling up innovation through health data (Day 3), presented by 40 speakers and panellists from diverse backgrounds.

The ECHAlliance is organising a session on the 29th at 14.40 CEST, under the theme Citizens’ health data sharing, with the following panel of speakers:

  • Carina Dantas (ECHAlliance)
  • Prof. Dr. Mark Lawler (European Cancer Organisation / Queen’s University Belfast)
  • Nilsy Desaint (MSD)
  • Danny van Roijen (COCIR)
  • Gözde Susuzlu Briggs (Data Saves Lives/ European Patients’ Forum)

Thousands of Europeans have begun to share health data purposefully in the context of the COVID-19 pandemic. The debate around citizen-controlled health data sharing especially regarding adequate governance models has, however, been ongoing for much longer. This session explores citizens-centred data sharing. It starts with a COVID-19 use case, and complements it with the results from a large-scale survey on citizens’ attitude towards health data sharing. Finally, we will consider citizens’ and patients’ perspectives on the topic.

Check out the full agenda and register for free here

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