Loading Events

« All Events

The European Conference on Rare Diseases & Orphan Products (ECRD) 2020

May 15 - May 16

The European Conference on Rare Diseases & Orphan Products (ECRD) is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape future rare disease policies.

The event draws together more than 800 participants from over 50 countries around the world. Leading, inspiring and engaging all stakeholders to take action, ECRD is where innovative solutions in the rare disease field are born. The Conference is an unrivalled opportunity to network and exchange invaluable knowledge with all stakeholders in the rare disease community  – patient representatives, policy makers, researchers, clinicians, industry representatives, payers and regulators.

Brian O’Connor will moderate the  Session “Patient Organisations and health data”, the objective is to learn about the role patient organisations can play as data curators: what do they need in terms of capabilities, tools and processes, education and tips on how to develop partnerships with technology companies

Bleddyn Rees will moderate the session “Quality assessment of mHealth apps”, which objective is to equip attendees with important aspects of assessing an app/platform: safety and effectiveness, benefits and risks

People living with a rare disease have the right to reach their highest potential of well-being; join us in ECRD 2020 Stockholm to take part in discussions to inform and build the future ecosystem for rare disease policies and services.


Are you conducting research on rare diseases or public health projects? Don’t miss the chance to showcase your work at #ECRD2020, submit your poster abstract by 10 February:

More information here: https://www.rare-diseases.eu/posters/?fbclid=IwAR2h9AIhkapaucMk8kber2t8Q0IYm7sR4OHmByJDKENjlinvS1OG4SDMfOA


May 15
May 16


Mässvägen 1, 125 30 Älvsjö
Stockholm, Sweden
+ Google Map