This is the third article of the Dutch global non-profit patient organisation for patients with CMTC and Other Vascular (bloodvessel) Malformations, their families and healthcare providers. As children are born with skin and/or physical problems, such as that at CMTC, we speak of Conspicuous External Features (CEF). Its divisiveness prevents this that there are all …

by Francesco Condello

Photo submissions for the Photo Award 2021 are now open, until 31st January 2021 (see form below). The EURORDIS Photo Award is an opportunity to visually express what it means to live with a rare disease and to share your story with the rare disease community and beyond. The contest is open to all nationalities, …

by Heather Smith
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