From the injured athlete who underwent ACL surgery to the mother recovering from a broken ankle, the nation’s opioid epidemic selects its victims indiscriminately and at an alarming rate, with 8% to 12% of patients prescribed painkillers eventually developing a use disorder. As of 2017 – the most recent full year for which data is …

by Heather Smith

When Jeff Johnson, 66, went online to sign up for Medicare, the trickiness of the process left him frustrated and a little embarrassed. “Even for me, a lifelong computer geek, there was a complexity that I did not understand. I had to call a friend for help,” he admitted. If anyone should be able to sail …

by Heather Smith

On 14 March 2019 EURORDIS and ECHAlliance hosted their first joint webinar.  Chaired by Denis Costello, Web Communications Senior Manager & RareConnect Project Leader, EURORDIS and presented by Brian O’Connor, ECHAlliance Chair, the session focussed on: How innovation changes lives; Providing details of the new strategic partnership between EURORDIS and ECHAlliance; Explaining the purpose of health ‘ecosystems’.   Webinar recording Denis Costello explained: “We recently joined the …

by Matt Grek

A EUROPE THAT CHAMPIONS WELL-BEINGReframing EU priorities for the next five years A global paradigm shift is occurring in attitudes towards economic and social progress. From a GDP centred model, a new paradigm now focuses on improving citizen’s well-being. All Policies for a Healthy Europe is a multi-stakeholder initiative calling for Europe to be part of …

by Matt Grek

The European Commission is announcing the winners of a pan-European competition open to researchers addressing grand scientific and technological challenges that could change our future. The six preparatory actions now launched will have one year to prepare science and technology agendas in areas of strategic importance for Europe. These may contribute to defining and launching …

by Matt Grek

On the 25th February Joan Cornet, Director Digital Health Observatory and Coalition of the Willing at ECHAlliance participated to European Reference Network Advisory Committee meeting on ethics and legal aspects. European Reference Networks (ERNs) are virtual networks involving healthcare providers across Europe. They aim to facilitate discussion on complex or rare diseases and conditions that require highly specialised treatment and …

by Matt Grek

Joan Cornet, Director Digital Health Observatory and Coalition of the Willing at ECHAlliance has participated in the Digital Future Society event on the 24th February in the frame of Mobile World Congress 2019.  The Digital Future Society Summit is where policymakers, entrepreneurs, civic leaders and forward thinkers converged to explore how we might build a more equitable, sustainable and inclusive future …

by Matt Grek

The UK government will today announce a new National Genomic Healthcare Strategy to ensure the UK is able to offer a predictive, preventative and personalised health and care service for people with rare diseases. The strategy will set out how the genomics community can work together to make the UK the global leader in genomic …

by Matt Grek

The European Commission has adopted a Recommendation on a European Electronic Health Record exchange format. The Recommendation supports the digital transformation of health and care in the EU by seeking to unlock the flow of health data across borders. The recommendation seeks to facilitate the cross-border interoperability of electronic health records (EHRs) in the EU by supporting Members …

by Matt Grek

Alder Hey Childrens Hospital wanted to say a huge thank you to Tesla Owners UK for their wonderful donation to help make children’s hospital visits more fun and that much easier. Alder Hey handed them over to our young boffins, who proceeded to run riot around the hospital!

by Matt Grek