Personal experience on Rare Disease Day from Katie Allen, from CMTC-OVM Katie is one of our Patient Advocates from Canada and shares a bit of her experience. We not only …

by Ines Lujan

An EU joint initiative was implemented in November of 2022, to address the hurdles in cross-border trials and cross-border trial access. We’re proud to announce that Patient in Focus is …

by Ines Lujan

In practice, it appears that after a conversation with, for example, a doctor, it is no longer clear what has been discussed and agreed. We have developed a special folder …

by Adriana Diaz

Societal Impact of Pain (SIP) revisited its Road Map Monitor and the new version is now available ICD-11 (International Classification of Diseases 11th Revision) has been a SIP priority for …

by Ines Lujan

For the first time in continence care, international scientific societies and patient organizations have come together as equal partners to commit to a formal collaboration that addresses the needs of …

by Ines Lujan

Niklas was born in 2016 with Diffuse Capillary Malformation with Overgrowth (DCMO). The main problem at the moment is the length difference between his legs. However, this is not holding …

by Adriana Diaz

Imparting findings of scientific studies to the general public and making a real-world difference is always a challenge. Anxiety UK sought to share the results of a service evaluation undertaken …

by Ines Lujan

Patient in Focus is looking for Lupus patients and caregivers from Europe, Asia, Latin America and the United States. Patient in Focus is teaming up with a healthcare innovator to …

by Ines Lujan

Are you a woman using contraception/birth control between 18-50 of age? Do you want to participate in a paid 20 question survey where you get to share your opinions and …

by Adriana Diaz

Patient in Focus is making sure that more people can follow along. New and improved social media accounts are now available in English. You can follow along and participate in …

by Adriana Diaz
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