Personal experience on Rare Disease Day from Katie Allen, from CMTC-OVM Katie is one of our Patient Advocates from Canada and shares a bit of her experience. We not only …
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An EU joint initiative was implemented in November of 2022, to address the hurdles in cross-border trials and cross-border trial access. We’re proud to announce that Patient in Focus is …
In practice, it appears that after a conversation with, for example, a doctor, it is no longer clear what has been discussed and agreed. We have developed a special folder …
Societal Impact of Pain (SIP) revisited its Road Map Monitor and the new version is now available ICD-11 (International Classification of Diseases 11th Revision) has been a SIP priority for …
For the first time in continence care, international scientific societies and patient organizations have come together as equal partners to commit to a formal collaboration that addresses the needs of …
Niklas was born in 2016 with Diffuse Capillary Malformation with Overgrowth (DCMO). The main problem at the moment is the length difference between his legs. However, this is not holding …
Imparting findings of scientific studies to the general public and making a real-world difference is always a challenge. Anxiety UK sought to share the results of a service evaluation undertaken …
Patient in Focus is looking for Lupus patients and caregivers from Europe, Asia, Latin America and the United States. Patient in Focus is teaming up with a healthcare innovator to …
Are you a woman using contraception/birth control between 18-50 of age? Do you want to participate in a paid 20 question survey where you get to share your opinions and …
Patient in Focus is making sure that more people can follow along. New and improved social media accounts are now available in English. You can follow along and participate in …