This report presents the findings of a multi- stakeholder round table consultation, in the form of consensus papers from three Working Groups to examine the acceptance criteria for societal trust in the use of health data and a recipe for trustworthy digital health: standards, architecture and value. The three Working Groups were developed and convened …

by Francesco Condello

As you know, the ECHAlliance is a partner in the DigitalHealthEurope (DHE) project. Besides many other interesting and relevant results which we have been previously communicated to you, the project team is now very proud to announce that DHE has delivered recommendations to the European Commission about the future European Health Data Space (EHDS). DHE …

by Francesco Condello

The ECHAlliance was a proud partner of the eHealth Summit 2021, the largest event for innovation and digital transformation in health held in Portugal, organised under the Portuguese Presidency of the EU. The event gathered hundreds of experts, professionals and stakeholders from the world of digital health, in more than 50 thematic sessions, committed to …

by Francesco Condello

“Data to citizens: the variants of trust for health data sharing” was the name given for the closing keynote speech of the 31st Medical Informatics Europe Conference (MIE2021) on 31 May. Carina Dantas, Senior Project Manager at the ECHAlliance discussed with a lively audience the challenges and enablers to enhance citizen participation and ownership of …

by Francesco Condello

Recommendations from multi-stakeholder round tables, organised by the Digital Health Society (DHS) & the European Institute for Innovation Through Health Data (I~HD) This contribution summarises the outcomes of two recent multi-stakeholder consultations to examine the acceptance criteria for societal trust in the use of health data and a recipe for trustworthy digital health: standards, architecture and value. The Round Tables …

by Francesco Condello

The ECHAlliance and DHS keep raising awareness and advocating for citizens empowerment towards the European Health Data Space ‘EHDS’ and the Data Governance Act.  We submitted our feedback positions to the European Commission’s consultations on these two topics, fostering a strong plan for capacity building on a trio of citizen literacies – health, digital and data literacy, preventing inequalities and …

by Heather Smith

Discussions on data sharing have multiple perspectives, interests and even biases and the only way forward is to acknowledge the tensions but search for the potential compromises that can be implemented in the short-term. It is essential to progressively improve the testing of new models, the amount of data being shared and the awareness of …

by Heather Smith

The Regulation will facilitate data sharing across the EU and between sectors to create wealth for society, increase control and trust of both citizens and companies regarding their data, and offer an alternative European model to data handling practice of major tech platforms. The amount of data generated by public bodies, businesses and citizens is …

by Heather Smith

The ECHAlliance led the discussion around some  of the DigitalHealthEurope Project research and results, at the Digital Health Society Virtual Summit, on the 17 and 18th November. The Summit was organised for the second consecutive year by the Digital Health Society. The discussion focused on Citizen-centred data sharing governance and Support to demand and supply …

by Heather Smith
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