Mar 3

Calls to Action on Health Data Ecosystems – Recommendations from multi-stakeholder round tables

Recommendations from multi-stakeholder round tables, organised by the Digital Health Society (DHS) & the European Institute for Innovation Through Health Data (I~HD) This contribution summarises the outcomes of two recent multi-stakeholder consultations to examine the acceptance criteria for societal trust in the use of health data and a recipe for trustworthy digital health: standards, architecture and value. The Round Tables …

by Francesco Condello
Feb 8

The ECHAlliance & The Digital Health Society keep raising awareness and advocating for citizens empowerment

The ECHAlliance and DHS keep raising awareness and advocating for citizens empowerment towards the European Health Data Space ‘EHDS’ and the Data Governance Act.  We submitted our feedback positions to the European Commission’s consultations on these two topics, fostering a strong plan for capacity building on a trio of citizen literacies – health, digital and data literacy, preventing inequalities and …

by Heather Smith
Dec 16

Citizen controlled data sharing governance Combined report from the session at Digital Health Society Summit

Discussions on data sharing have multiple perspectives, interests and even biases and the only way forward is to acknowledge the tensions but search for the potential compromises that can be implemented in the short-term. It is essential to progressively improve the testing of new models, the amount of data being shared and the awareness of …

by Heather Smith
Nov 26

Commission proposes measures to boost data sharing and support European data spaces

The Regulation will facilitate data sharing across the EU and between sectors to create wealth for society, increase control and trust of both citizens and companies regarding their data, and offer an alternative European model to data handling practice of major tech platforms. The amount of data generated by public bodies, businesses and citizens is …

by Heather Smith
Nov 26

Citizen-centred data sharing governance and digital solutions at scale at the DHS Summit

The ECHAlliance led the discussion around some  of the DigitalHealthEurope Project research and results, at the Digital Health Society Virtual Summit, on the 17 and 18th November. The Summit was organised for the second consecutive year by the Digital Health Society. The discussion focused on Citizen-centred data sharing governance and Support to demand and supply …

by Heather Smith
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