The ECHAlliance and DHS keep raising awareness and advocating for citizens empowerment towards the European Health Data Space ‘EHDS’ and the Data Governance Act.  We submitted our feedback positions to the European Commission’s consultations on these two topics, fostering a strong plan for capacity building on a trio of citizen literacies – health, digital and data literacy, preventing inequalities and …

by Heather Smith

Discussions on data sharing have multiple perspectives, interests and even biases and the only way forward is to acknowledge the tensions but search for the potential compromises that can be implemented in the short-term. It is essential to progressively improve the testing of new models, the amount of data being shared and the awareness of …

by Heather Smith

The Regulation will facilitate data sharing across the EU and between sectors to create wealth for society, increase control and trust of both citizens and companies regarding their data, and offer an alternative European model to data handling practice of major tech platforms. The amount of data generated by public bodies, businesses and citizens is …

by Heather Smith
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